Having A Son With Down Syndrome - An Introduction To Aiden by groovy

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introduceyourself · @groovy · Jul 19 '16 (edited)

$6,966.82

Having A Son With Down Syndrome - An Introduction To Aiden

<html>
<p><img src="https://s5.postimg.org/ciy4eu6hz/20160717_180004.jpg" width="360" height="640"/></p>
<h1><strong>Finding Out</strong></h1>
<p><strong>At about 30 weeks my wife started getting bigger than she should of. For some reason she was taking on extra fluid that should have drained. It turned out that our son had an abnormality where his stomach did not attach to his intestines that was causing my wife to take on too much fluid.</strong></p>
<p><br>
<strong>At first the doctors described what the problem was and then that it was 95% successful in treating however there is a high correlation between this and down syndrome, however without further tests they could not know for sure. This gave us some time to start to prepare for what was to come.</strong></p>
<p><br>
<strong>Every parent has ideas of what their child will be and hopes that they have a healthy child and this was our hope as well. The tests came back positive that our son had Down Syndrome and I will admit that I was taking back by it at first. I wasn’t sure what to think and as most things of this level it takes some time to sink in. There were ranges of emotions from anger to sadness as well as an understanding that Aiden was a person too and his life is important.</strong></p>
<p><br>
<strong>At this point in time I had no real connection to Aiden other than he was to be my son. However that was soon to change as we got to do regular ultrasounds that showed pictures of my son moving around in his mother's belly. &nbsp;I was soon to find out that Aiden was a charismatic and energetic young man with lots of wit even before he was born.</strong></p>
<p><br>
<strong>We could see Aiden liked to swim and play and one time he even grabbed hold of a needle that the doctor was using to drain the excessive fluid. It was pretty cool.</strong><br>
<strong>I was already starting to learn a little about Aiden's incredible personality that I was going to get to know even better very soon.</strong></p>
<h1><strong>At Last We Meet</strong></h1>
<p><img src="https://s5.postimg.org/ps7g175uv/316357_10100360603983557_3642150_n.jpg" width="640" height="480"/></p>
<p><strong>Finally the day came. Aiden was born premature by a few weeks early via a C section. He was very small and weight 7.5 pounds. He had to go to the NICU right away where he was put on oxygen and nutrient support since his stomach did not connect to his intestines. That was a rough time as we were not sure if would live for sure.</strong></p>
<p><img src="https://s5.postimg.org/k2r7gvzon/262490_10100353459945267_2112133_n.jpg" width="640" height="382"/></p>
<p><br>
<strong>Still I could see right away with his energy and the way he would look at me that this little man was the same guy who loved to swim and play in his mom just days before. He would grab my finger and shake it every time we came to visit him in the hospital. Something inside me knew that he was going to be ok but still I prayed for his health and safety every day.</strong></p>
<p><br>
<strong>The day came for the operation to take place that would connect his stomach to his intestines and we were all very nervous and anxious to see him be better and start drinking milk. It was a 5 hour wait and the news was good, Aiden came through perfect.</strong></p>
<p><br>
<strong>Unfortunately there was more to come that was not known about. Aiden was diagnosed with transient leukemia once his blood tests came back with low platelet counts. &nbsp;Well without knowing anything about leukemia we were once again sent into a panic of fear that our son could potentially die. &nbsp;With a deep breath we started researching and finding out more about what this mean. It turned out after speaking with a specialist that this form of leukemia called transient as the name suggests comes and goes. That is the blood levels of certain platelets will go up and down without causing any serious side effects and that 89% of cases are curable if they go into full leukemia.</strong></p>
<p><br>
<strong>Well that was good news and it just meant that we were going to have to monitor his blood levels for the next 10 years.</strong></p>
<p><br>
<strong>As Aiden got stronger in the NICU I could see his little personality and charm coming out. He naturally had a nice calm disposition and would often laugh and smile at us when we would visit. Soon he would be coming home after 3 weeks.</strong></p>
<p><img src="https://s5.postimg.org/4wl5py9nr/315015_10100375690220617_1421326296_n.jpg" width="480" height="640"/></p>
<h1><strong>Living With Aiden</strong></h1>
<p><strong>Aiden quickly won my heart and became my new best friend. &nbsp;He loved to play with whatever he could get his hands on. I remember one time when he got his hands on a small ball and then threw it and let out a big evil laugh. I loved it.</strong></p>
<p><img src="https://s5.postimg.org/5amhpjtrb/420307_10100670625947057_30217794_n.jpg" width="382" height="640"/></p>
<p><br>
<strong>I soon learned that anything a typical kid could do Aiden could do too. Whether playing ball, or climbing rocks Aiden would do it. His fascination with learning was and is incredibly strong. He wanted to read books all day and learn sign language. Signing Time videos quickly became his favorite and I began to realize that people with down syndrome are very capable people.</strong></p>
<p><br>
<strong>There are tough times as certain things are more challenging and he can still be a little stinker like all kids saying no and terrifying his sister by hitting her and taking her things.</strong></p>
<p><img src="https://s5.postimg.org/it2ktbko7/11113785_10103919170442847_4029020130363916426_n.jpg" width="360" height="640"/></p>
<p><strong>Trucks, Trains, and Super Heroes are his favorite things and he is all boy when it comes to what he loves to do. We are proud of our little man as he can count to 10 and knows his ABCs and is only 4 years old.&nbsp;</strong></p>
<p><img src="https://s5.postimg.org/drqle7ntz/10382970_10101377990533027_4071585824664499283_n.jpg" width="640" height="480"/></p>
<p><img src="https://s5.postimg.org/k0giljasn/13344590_1206860339348538_1931175691147933733_n.jpg" width="206" height="374"/></p>
<p><br>
<strong>One of the hardest things for people with down syndrome is talking since people with down syndrome have low muscle tone it causes their tongue to relax and this where the speech issues come in. So we are working hard on this one and it takes some time unlike our daughter who is talking and a year younger. Aiden knows lots of words and understands what you are saying but for him saying the words together to make sentences is harder than for us. &nbsp;Still he always puts in a best effort and has a smile to go along with it.</strong></p>
<p><img src="https://s5.postimg.org/5v645zcdj/482930_10102110338935687_1589300424_n.jpg" width="478" height="640"/><br>
</p>
<p><strong>I must say living with Aiden has its challenges but at the same time the rewards are having his happy voice and smile cheer me up anytime I want.</strong><br>
&nbsp;</p>
<p><img src="https://s5.postimg.org/7kjsrshgn/12801390_10104448553744467_8235039267942661893_n.jpg" width="360" height="640"/></p>
<p><br></p>
<p><strong>Thanks for taking the time to read my story.</strong></p>
<p>https://steemit.com/@groovy</p>
<p><br></p>
<p>ADDITIONAL PROOF THIS IS NOT FAKE FOR PEOPLE ASKING IN THE COMMENTS SECTION BELOW.&nbsp;</p>
<p>HERE ARE TWO MORE PHOTOS OF AIDEN HOLDING THE PAPER THAT I WROTE ON THAT I DID NOT USE WHEN I MADE THIS POST.</p>
<p><img src="https://s5.postimg.org/cm0dkn3on/20160717_175946.jpg" width="360" height="640"/></p>
<p><br></p>
<p><img src="https://s5.postimg.org/frkzaumav/20160717_175944.jpg" width="360" height="640"/></p>
<p><br></p>
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@ainsleyjo1952 · Jul 14 '17

I read your family's story several weeks ago but wasn't yet a member of Steemit yet, so I couldn't respond.  Glad that I'm now both a member and able to access the site.  Anyway, this is very inspiring, and I hope to be reading more about you son in the time to come.

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@anon.news · Jul 18 '16

I can't even imagine... Sending Blessings ♡

👍 anon.news, groovy, activcat

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@groovy · Jul 18 '16

Thanks for the blessings.

👍 anon.news, activcat

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@anon.news · Jul 18 '16

That's what we're here for! 
Congrats on the success of your post! Truly Blessed Indeed ♡ so awesome!

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@ash · Jul 18 '16

sorry, no proof. have to downvote

👎 lurker1

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@groovy · Jul 18 '16

$1.30

I guess I am not getting this hate attitude here. What was wrong with the picture I took with my son holding a piece of paper that I wrote the words on and the date. That should be proof enough. Honestly my son is at the babysitter right now and I would have to figure out the video thing. I post to facebook but I do not see any share link there. So that means I would have to take a video of my son and then post it to youtube and then share that to you this morning. If you had kids you would understand how much of an ordeal that would be on a monday morning when you are dealing with life. Please the image at the start should be proof.

👍 cryptogee, lurker1, nathanjones

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@ash · Jul 18 '16 (edited)

please don't take this personal. you wouldn't send the nigerian prince mailing you asking for money, would you? try to understand us :)

👍 ausbitbank
👎 lurker1

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1 reply

@nathanjones · Jul 18 '16

Now that the author has posted the proof, it would be kind to remove your down vote if you have not already done so.  This person seems genuine and I am shocked to be honest of the lack of courtesy to down vote prior to them being given the opportunity to provide the proof you seek. Thanks.

👍 ausbitbank

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@ash · Jul 18 '16

yes, thanks for the heads up!

👍 ausbitbank, nathanjones

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@ausbitbank · Jul 18 '16 (edited)

Thankyou for sharing your story. I know first-hand what it's like having a kid (or two!) with a intellectual disability - My partner @krystle and I have 2 beautiful but frustrating non-verbal autistic youngins with a bunch of severe sensory issues.

 The scene with the toilet paper/tissues is all too familiar , at least your one didn't poo paint around with it too .. The daily struggles are draining, but its all worth it when you see these moments of absolute love and joy :) 

I hope the community keeps showing you love -  Welcome to steemit @groovy !

👍 ausbitbank

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@awakenaware · Jul 18 '16

Thank you for sharing . God makes no mistakes.

👍 groovy

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@groovy · Jul 18 '16

Thanks I believe the same thing.

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@bhokor · Jul 18 '16

he is happy, he have a great parents, all is right, thanks for share this beauty story

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@blueorgy · Jul 18 '16 (edited)

If I could give it... I would wish you guys all the happiness and joy in the world! I hope to hear more about you and your amazing family. :) Btw this is a wonderful post and we need more like it. Big Up Vote!

👍 cotough, groovy, activcat

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@groovy · Jul 18 '16

Thanks for the good wishes.

👍 geronimo, activcat

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@boyarov · Jul 18 '16

YOU SHOULD HAVE ABORTED IT YOUR UGLY POOR PIECE OF SHIT

👍 jamtaylor, pnc, business, katecloud, taurus, diana.catherine, sunshinecrypto, endaksi1, apparobotnik, damien-beverly, knyaz, davidgriffin, arvind, boyarov, ma3, akram01127, endemiahoraria
👎 steempty, cryptoctopus, tshering-tamang, blueorgy, anduweb, steemitpolitics, kareemaudi

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@kareemaudi · Jul 18 '16

disgusting. Someone should cut off all your fingers and rip out your tongue.

👍 boyarov, steemitpolitics, kareemaudi
👎 taurus, diana.catherine, sunshinecrypto, geronimo, arvind

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@ma3 · Jul 18 '16

If only someone aborted you :( *a single tear falls from ma3's cheek*

👍 boyarov, ma3, steemitpolitics
👎 business, davidgriffin

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@ma3 · Jul 18 '16

i think you would be very popular politician in america now that I think about it, have you considered running for president in 2020? i'd be happy to support such a strong candidate as yourself.

👍 ma3, boyarov

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@steemitpolitics · Jul 18 '16

what heartless bastards are voting such a comment up?

👍 boyarov, steemitpolitics
👎 taurus, diana.catherine, sunshinecrypto, geronimo, knyaz, arvind

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@calva · Jul 19 '16

http://i.imgur.com/na2mhNx.gif

👍 groovy

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@cotough · Jul 18 '16 (edited)

$0.11

I also have a child with **Down Syndrome**.  She's an almost 10 year old who does the exact same thing with the box of tissues.  She would also unravel all the TP like a kitty cat when she was younger.  Looking forward to exchanging funny stories, as I have many!  Welcome. 
 http://i.imgur.com/OMM1E9K.jpg

👍 tshering-tamang, ausbitbank, cotough, katyakov, geronimo, clonewarz, anduweb, groovy, acustix1, ztl, belfordz, nathanjones

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@groovy · Jul 18 '16

That's so funny because I have seen certain behaviors  throughout children with down syndrome that stand out.  I'll be thinking that my kid is unique in certain ways and them one day I'll see a random kid with down syndrome doing the same stuff.  Thanks for the share and look forward to hearing your stories some day.

👍 cotough

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@cotough · Jul 19 '16

@groovy I know exactly what you mean.  I'll observe other people with down syndrome in public and I swear they make the exact same cheesy grin as my daughter.   Come on you know what I'm talking about right??  I assume you've at least heard about that show 

**"Born This Way"** 
http://www.aetv.com/shows/born-this-way 

http://i.imgur.com/4Nd57xs.png

I see so many of the same **behaviors/mannerism's** as my daughter....it's kinda funny

👍 cotough, groovy, williambanks

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1 reply

@elargroup · Jul 18 '16 (edited)

Welcome to the Steam.

👎 ausbitbank

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@felisemalu · Jul 18 '16

Lovely family brother hope everything is good and God Bless.

👍 pnc

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@freefolk · Jul 18 '16

What a loving family and amazing little boy

👍 groovy

properties (23)vote details (1)

@groovy · Jul 18 '16

Thanks for the kind words.

properties (22)

@geronimo · Jul 18 '16

he is very cute, thanks for sharing :)

properties (22)

@groovy · Jul 18 '16

Thanks,  I am glad you liked the share.

properties (22)

@getssidetracked · Jul 18 '16

$2.63

Wonderful story! Welcome to Steem! The last picture is really heart-warming, you all look so happy together! I wish to some day find the same kind of happiness.

👍 cryptoctopus, acidyo, groovy
👎 business

properties (23)vote details (4)

@groovy · Jul 18 '16

I believe you will find the same kind of happiness it comes in many ways for me something that was hard to deal with became quite a blessing.

👍 cotough, getssidetracked

properties (23)vote details (2)

@cotough · Jul 18 '16

Yes. It's very cliche' sounding, but walking through discomfort and fear is what makes us better human beings.

👍 cotough

properties (23)vote details (1)

@holzmichl · Jul 19 '16

Hello,

thank you for sharing your story. My kids also have fun drawing paper pieces out of boxes and throwing through our home.

It's sad to read all those "show my a video proof" posters. 

Best regards,
holzmichl

👍 holzmichl

properties (23)vote details (1)

@honeythepoodle · Jul 19 '16

$0.04

I can relate, my father has been working with artists having Down-syndrome, at Baltazar Theatre in Hungary. They are amazingly sensitive and can express very strong emotions through their art.
Aiden is amazing. :)

👍 groovy, cotough, yiskadesign

properties (23)vote details (3)

@invent · Jul 18 '16

Great story and much love to you and your family. My older sister was born with Down's and I know the challenges can be tough. Sounds like Aiden has already taught you some important lessons on patience and love. Thank you for sharing!

👍 ausbitbank, groovy, satch

properties (23)vote details (3)

@groovy · Jul 18 '16

Thanks so much for the kinds words, Aiden definitely has taught me patience and love.

👍 invent

properties (23)vote details (1)

@jenmolon · Jul 18 '16

What a heartwarming post.  Aiden is surely very lucky to have you as parents.  He's adorable and can make anyone's heart melt with this smile.  :)

👍 ausbitbank, satch

properties (23)vote details (2)

@groovy · Jul 18 '16

Thanks that means so much I appreciate the kind words. His smile and joy keeps me going.

properties (22)

@joelinux · Jul 18 '16

I respect you; good man!

👍 joelinux, christoryan, stephencurry, anduweb, groovy, weezy, activcat
👎 business, taurus, diana.catherine, knyaz, davidgriffin

properties (23)vote details (12)

@groovy · Jul 18 '16

Thanks

👍 weezy, activcat

properties (23)vote details (2)

@jugg · Jul 18 '16

$0.08

Hate to sound like the bad guy here but... does Aiden really love steemit?

👍 business, ma3, positive, condra, timer-the-teemer, jugg

properties (23)vote details (6)

@groovy · Jul 18 '16

He will when I buy him stuff from the post about him. LOL

properties (22)

@legionwarriorjim · Jul 18 '16

I have to agree with the latter mate, Children aren't like they were 20 years ago, When i was a child, I get my child involved in everything from facebook to minecraft, She's 2 coming on 22.. She loves to sit there and watch me play games like ARMA3 and tries to get involved all the time... So yeah - I think he probably does like steem, His parents have clearly got him involved with it.. Respectfully.. :)

properties (22)

@groovy · Jul 18 '16

Yeah Aiden is already a very tech savy kid. He uses ipad daily. He can scroll through and pick out games and then figure out how to use them. Very smart. Like I said in my post having a kid with down syndrome has showed me he can do most everything.

properties (22)

@ma3 · Jul 18 '16

you're a vile human bean

properties (22)

@ma3 · Jul 18 '16

$0.08

just because he has down syndrome doesn't mean he can't understand complicated cryptocurrency mechanics, i wouldn't be surprized if he has over 9000 confirmed kills in iraq.

anything is possible, and i can tell this kid is going to achieve super saiyajin 2 VERY SOON. 

God bless.

👍 tshering-tamang, cotough, ma3, positive, groovy, jugg

properties (23)vote details (6)

@jugg · Jul 18 '16

Yeah i guess they're just starting young these days..

👍 positive

properties (23)vote details (1)

@julianoca · Jul 18 '16

Make a video or post the images again, you can not carry.

👍 julianoca
👎 lurker1

properties (23)vote details (2)

@groovy · Jul 18 '16

I guess I am not getting this hate attitude here. What was wrong with the picture I took with my son holding a piece of paper that I wrote the words on and the date. That should be proof enough. Honestly my son is at the babysitter right now and I would have to figure out the video thing. I post to facebook but I do not see any share link there. So that means I would have to take a video of my son and then post it to youtube and then share that to you this morning. If you had kids you would understand how much of an ordeal that would be on a monday morning when you are dealing with life. Please the image at the start should be proof.

👍 groovy, nathanjones

properties (23)vote details (2)

@groovy · Jul 18 '16

Thanks for the support.

properties (22)

@nathanjones · Jul 18 '16

Now that the author has posted the proof, it would be kind to remove your down vote if you have not already done so.  This person seems genuine and I am shocked to be honest of the lack of courtesy to down vote prior to them being given the opportunity to provide the proof you seek. Thanks.

👍 groovy

properties (23)vote details (1)

@groovy · Jul 19 '16

Thanks for the support.

properties (22)

@katyakov · Jul 19 '16

Thank you for a beautiful story! Let's keep all the suspects aside, I prefer to think about it as of a true story until anyone proves to me that I'm wrong.

We are working with kids with special needs, and I am happy to see a great example of a family, who is embracing the challenges and stay together, happy and loving each other! All the best to you!

You can also follow our project and join us some weekend, if you happen to be in New York :)

https://steemit.com/charity/@katyakov/officially-the-first-charity-post-on-steemit-easier-than-ever-every-upvote-makes-a-kid-with-special-needs-smile

properties (22)

@kuriko · Jul 19 '16

Your a great mom!

properties (22)

@legionwarriorjim · Jul 18 '16

Hey buddy! As a fellow parent to two children I am extremely proud to welcome you here to steemit, Your little boy, Aiden is gorgeous! He deserves everything the world has to give him and more!

👍 ausbitbank, groovy

properties (23)vote details (2)

@lukmarcus · Aug 4 '16

Hi! I'm doing statistics for best introductions (https://steemit.com/introduceyourself/@lukmarcus/mega-statistics-and-analysis-for-top-50-most-popular-steemit-introductions-introduceyourself). Is it possible to tell  where are you from (country) and what's your age?

properties (22)

@lurker1 · Jul 19 '16

Congrats on your post. The $7,005.94 listed (at time of writing) is real money that will be paid out to your account in the next 20 minutes or so. You should seriously consider [cashing at least some of it out](https://steemit.com/steemit/@lurker1/step-by-step-how-to-cash-out-your-steemit-earnings-to-usd). If you click that link it will take you to a write-up on the process.

Welcome to the community and I'm sorry for all those that were overly skeptical up front. It's the growing pains of the platform.

👍 lurker1

properties (23)vote details (1)

@mastletter · Jul 19 '16

Such angry and heartless people. Proof! Аll you need is proof! All the proofs are between the lines! Sadness, despair, pain, care, tenderness, love, hope for the future! These feelings are proofs! 
Aiden, I wish you to be happy! You grow up in a great family! And you make your parents happy!
groovy, you are a man of merit !

properties (22)

@mod-tamichh · Jul 18 '16

Aiden, we love you. More steem for you and keep the smiles rolling :). Thanks for the post!

👍 mod-tamichh
👎 business

properties (23)vote details (2)

@phanie90 · Jul 19 '16

https://s32.postimg.org/vbcv1sttx/2014_12_27_16_24_49_deco.jpg
https://steemit.com/steemit/@phanie90/tutorial-korean-make-up-just-5-minutes

👎 cass

properties (23)vote details (1)

@politicasan2 · Jul 18 '16

youre son is really handsome

👍 pnc

properties (23)vote details (1)

@positive · Jul 18 '16 (edited)

$1.28

Hello, can you provide a video proof that that is you? Just a short film of you saying something Steem related. 

Because it appears that these images have been edited.

I apologise sincerely if I'm wrong. 

I will give you time to respond before flagging you.

Gave your 5 hours no response, so I've written a post and flagged you:

https://steemit.com/introduceyourself/@positive/potentially-disgusting-scam-hope-it-s-not-true-groovy-introduceyourself

👍 cass, frostwind, business, mrwang, demotruk, inertia, positive, acidyo, timer-the-teemer, anduweb, wisehammer, acustix1, mosab, ztl
👎 lurker1

properties (23)vote details (15)

@ausbitbank · Jul 18 '16

$1.08

I really hope you're wrong about this, we don't need scammers like that in the community..

👍 cass, frostwind

properties (23)vote details (2)

@cass · Jul 18 '16

$0.94

Welcome aboard - i'd also love to see a video proof with you all together!I Apologize if i'm wrong here - pls don't take it offended - but if u aren'T able to provide until payout, i've to downvote this post .. **why**? 

It is really a sensitive topic with scams and content thefts etc currently, so pls provide a video proof , schouldn't be a problem

👍 cass, vkoreshkoff

properties (23)vote details (2)

@cotough · Jul 18 '16

$0.08

I disagree.  These look like everyday, run of the mill images.  What aspect looks edited?

👍 tshering-tamang, cotough

properties (23)vote details (2)

@positive · Jul 18 '16

$0.97

I ran it through http://imageedited.com/ and checked the metadata which appeared to indicate some modification. Though I realise I may be wrong. I just want to make sure scams don't prevail.

👍 cass, cotough, timer-the-teemer, legionwarriorjim

properties (23)vote details (4)

1 reply

@cryptoctopus · Jul 18 '16

$1.03

me too. Please provide video proof. Sorry if I am wrong in advance.

👍 cass, mrwang, demotruk, acidyo, ztl

properties (23)vote details (5)

@groovy · Jul 18 '16

$0.08

Are you serious! First of all when I left this last night it was 12:30 AM at night and now it is 10:52 AM. In case you didn't notice my son is holding a sign up with words I wrote on it. I believe this is proof enough.  I think your name positive should be negative.  Please this is a bad way to try and moderate especially when my son is holding a sign up that is clearly not edited in any way.

👍 tshering-tamang, legionwarriorjim, flexcougar, nathanjones
👎 timer-the-teemer

properties (23)vote details (5)

@legionwarriorjim · Jul 18 '16

Can you provide evidence that YOU are you? :) just saying.. Flagging people for your own personal distrust is distasteful to say the least.

👍 cotough, patrick-g, lurker1, nathanjones
👎 anduweb

properties (23)vote details (5)

@positive · Jul 18 '16

$2.67

It's not about distrust. I don't want to see the same scams that have infected every social media affect Steem. 

Principally because this time scamming would be legitimized. 

So you'd have an economy based on underhand behaviour, which will not encourage the sort of traffic that would benefit Steemit in the long run.

👍 cryptogee, cass, mrwang, strangerarray, acidyo, condra, timer-the-teemer, supermeatboy, legionwarriorjim
👎 lurker1

properties (23)vote details (10)

2 replies

@positive · Jul 18 '16 (edited)

I posted no images so I don't have to prove anything. No identity theft etcetera All I'm posting is content.

👍 patrick-g, wisehammer

properties (23)vote details (2)

@nathanjones · Jul 18 '16

$0.08

I don't understand this concept that everyone must provide proof of their reality to satisfy you, or any other random person here. If you honestly feel they are fake, that is one thing, but to down vote or threaten a down vote because they have not provided video proof within a certain time frame is ridiculous. Obviously you have no idea of the struggles of someone that is raising a child with special needs. Otherwise you would not make such disrespectful requests. If you like the story up vote it, if you think someone is fake or taking advantage of the system then by all means down vote. These people seem very real to me and I am appalled at the number of comments here telling them to "prove it" when she has a number of photos with her son and the date on a piece of paper. You all need to check yourselves and your ego at the door. Steemit, I hope would be a community where we can support and learn from each other. People ask for proof, and say "sorry in advance if I'm wrong" how about send the person a message and get to know them, as you would in the real world. If then after you have some "proof" your self of something fake about a post or a person, then you down vote. I can not stress enough that this line of questioning to someone who has just posted a very person thing is not only very disrespectful, but only serves to keep others who may share their stories silent for fear of being attacked and called fake. I see there are still down votes on this post and I would encourage anyone who still has a down vote in place to remove it now. Thanks.

👍 tshering-tamang, supermeatboy

properties (23)vote details (2)

@positive · Jul 18 '16

They don't have to do anything. But depending on what they do I will flag because I don't want to endorse potential scams.

Secondly, I have alot of family with special needs please don't make assumptions about me, you don't know me.

I have also  witnessed first hand the depths people will go to, to extract money from others.

So I do not assume people to be  honest. I have a neutral opinion on people, and if a flag is raised I address it.

properties (22)

3 replies

@pravin.rasa · Jul 18 '16

Amazing and beautiful story, you have brightened up my day.

properties (22)

@groovy · Jul 18 '16

Thanks for the kind feedback I am glad Aiden brightened up your day.

properties (22)

@rdwn · Jul 18 '16

Five Best Places Watching Sunrise in Indonesia ,,,, STEEMIT!!
http://t.wallpaperweb.org/wallpaper/nature/1280x720/Bromo_Volcano_at_Sunrise_Java_Indonesia_1280x720.jpg
https://steemit.com/sunrise/@rdwn/five-best-places-watching-sunrise-in-indonesia-steemit

👎 steempty

properties (23)vote details (1)

@sauravrungta · Jul 18 '16

That was so heart-warming. Thank you for sharing that with us! :)
Best of wishes for the future.
P.S. Aiden's smile in that last picture melted my heart. hehe

👍 groovy, aish

properties (23)vote details (2)

@groovy · Jul 18 '16

So glad you liked the post.  Thanks.

properties (22)

@seagul · Jul 18 '16

Welcome to Steemit!

properties (22)

@sgnsteems · Jul 18 '16

What a wonderful family! Loved reading your story. Children with down sybdrome are so sweet its so hard not to love them! Wish your family and especially Aiden all the best!

👍 groovy, activcat

properties (23)vote details (2)

@groovy · Jul 18 '16

Thanks for your warm wishes.

👍 activcat

properties (23)vote details (1)

@shredlord · Jul 18 '16

Beautiful story. He looks like a champion.

👍 groovy, flexcougar, activcat
👎 business

properties (23)vote details (4)

@groovy · Jul 18 '16

Thanks.  He's a fun little man.

👍 hmfoucault, activcat

properties (23)vote details (2)

@hmfoucault · Jul 18 '16

It is great to know that other real people exist in the Steemit community. Warms my heart to support you and your family and see others do the same.

👍 ausbitbank, ffane, hmfoucault

properties (23)vote details (3)

@sliznut · Jul 19 '16

Oh man. Glad  you pulled through the scary stuff in the beginning! I have an uncle who is very much like Aiden and he has always been one of my best friends. It's hard not to love someone who is so genuine. 

I can definitely relate to you on that level, and that my daughter was in the NICU too due to a platelet issue. She had to have a blood transfusion but didn't have any lasting issues out of it. 

This this past April, my 9 year old son was diagnosed with type 1 diabetes completely out of the blue...and on his birthday no less. Very strange considering no family history of it. But I guess type 1 doesn't really require that either. Life definitely throws some curveballs!

👍 sliznut

properties (23)vote details (1)

@supermeatboy · Jul 18 '16 (edited)

$2.88

Very inspirational article. I am a geriatric nurse for handicapped people and try my best to gain some publicity on the topic of disability. I also work with 2 down syndrome people on my group and aim for exposing the differences between "normal" and "handicapped" (both are stupid terms) are really marginal. Let`s  make inclusion a visibile topic on steemit for the greater good of us all. 

Maybe you are interested in my stories I shared on this topic : https://steemit.com/disability/@supermeatboy/working-in-a-home-for-the-mentally-handicapped-part-two

👍 cryptoctopus, frostwind, ausbitbank, supermeatboy, fleetinuance, mylolmania, nathanjones, ainsleyjo1952

properties (23)vote details (8)

@ainsleyjo1952 · Jul 14 '17

I'll be following you for sure, as I love to read stories about people overcoming challenges.  At one time, I was planning on becoming a special education teacher, and I've volunteered in a lot of schools, groups, etc. and have been blessed by the people who live with challenges abut are so positive.

👍 supermeatboy

properties (23)vote details (1)

@groovy · Jul 18 '16

Thanks for being there for people who need the help. Yes the term down syndrome is a bit misleading especially when it comes the word Down which was a persons name. I personally like Trisomy 21 as a better term since it does not lead people to think the word Down is an indication of the disposition of a person. Thanks for your share.

👍 ausbitbank, supermeatboy

properties (23)vote details (2)

@theanubisrider · Jul 18 '16

I'm happy that your son came through. Congratulations on the little one. You're welcome and thank you for the story. I hope everything keeps going well for you guys.

👍 theanubisrider, groovy, activcat

properties (23)vote details (3)

@groovy · Jul 18 '16

Thanks so much for the kind words.

👍 theanubisrider, activcat

properties (23)vote details (2)

@tinyhomeliving · Jul 18 '16

Beautiful family! Thank you for sharing your story.

👍 groovy

properties (23)vote details (1)

@groovy · Jul 18 '16

I'm glad you enjoyed my story thanks for the kind words.

properties (22)

@ucing · Jul 18 '16

hello

👎 ausbitbank

properties (23)vote details (1)

@wang · Jul 18 '16

$0.07

Glad to have you around!

Here are some tips if you're not aware of already:
* Secure your account: https://steemit.com/steemit-guides/@pfunk/your-steem-account-is-worth-money-how-to-secure-it-with-a-new-owner-key-to-keep-it-yours-forever
* Verify your account and build your reputation: https://steemit.com/steem/@tuck-fheman/verified-accounts--reputation-system
* Contribute with your own contents: https://steemit.com/steem/@grittenald/copy-paste-steal-cite-your-sources, and https://steemit.com/steemit/@pfunk/lets-discuss-verification-of-user-accounts-posting-previous-work-to-prevent-impersonation
* Properly tagging your posts, especially when your content is `#NSFW` or for `#test` only
* Know how Steemit works: https://steemit.com/steemit/@donkeypong/still-confused-by-steem-steem-dollars-and-steem-power-the-power-plant-analogy

👍 tshering-tamang, weng, groovy, activcat, anon.news
👎 lurker1

properties (23)vote details (6)

@groovy · Jul 18 '16

Thanks for the good information.

👍 theanubisrider

properties (23)vote details (1)

@tshering-tamang · Jul 19 '16

@wang is a good bot in case you didn't know. ;)

👍 cotough

properties (23)vote details (1)

@wojooo · Jul 19 '16

Hi, very positive pics of Your son, good luck to you and keep smiling ! :)

properties (22)

@ynotplay · Jul 19 '16

God bless

properties (22)

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voter	rshares	pct
ausbitbank	10,870,923,332	100%
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voter	rshares	pct
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demotruk	10,211,663,885	100%

voter	rshares	pct
patrick-g	415,399,727	100%
cotough	6,334,179,142	100%
anduweb	-315,630,012	-100%
lurker1	230,228,202	100%
nathanjones	109,022,321	100%

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`last_update`	2016-07-18 08:33:45
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`cashout_time`	1969-12-31 23:59:59
`total_payout_value`	0.000 HBD
`curator_payout_value`	0.000 HBD
`pending_payout_value`	0.000 HBD
`promoted`	0.000 HBD
`body_length`	158
`author_reputation`	681,518,124,448,054
`root_title`	"Having A Son With Down Syndrome - An Introduction To Aiden"
`beneficiaries`	`[]`
`max_accepted_payout`	1,000,000.000 HBD
`percent_hbd`	10,000
`post_id`	162,333
`net_rshares`	428,429,685
`author_curate_reward`	""

`author`	seagul
`permlink`	having-a-son-with-down-syndrome-an-introduction-to-aiden
`category`	introduceyourself
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`created`	2016-07-18 19:37:03
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`children`	0
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`body_length`	19
`author_reputation`	560,251,690,286
`root_title`	"Having A Son With Down Syndrome - An Introduction To Aiden"
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voter	rshares	pct
ffane	250,226,657	100%
ausbitbank	10,870,923,332	100%
hmfoucault	180,342,979	100%

voter	rshares	pct
theanubisrider	2,812,912,187	100%
groovy	305,253,411	100%
activcat	63,978,765	100%

`author`	wang
`permlink`	re-groovy-having-a-son-with-down-syndrome-an-introduction-to-aiden-20160718t035442618z
`category`	introduceyourself
`json_metadata`	{"tags":[]}
`created`	2016-07-18 03:54:42
`last_update`	2016-07-18 03:54:42
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`children`	2
`last_payout`	2016-08-23 13:02:15
`cashout_time`	1969-12-31 23:59:59
`total_payout_value`	0.073 HBD
`curator_payout_value`	0.000 HBD
`pending_payout_value`	0.000 HBD
`promoted`	0.000 HBD
`body_length`	839
`author_reputation`	-37,765,249,963,674
`root_title`	"Having A Son With Down Syndrome - An Introduction To Aiden"
`beneficiaries`	`[]`
`max_accepted_payout`	1,000,000.000 HBD
`percent_hbd`	10,000
`post_id`	159,252
`net_rshares`	42,688,840,836
`author_curate_reward`	""

voter	rshares	pct
weng	336,165,903	10%
tshering-tamang	42,191,095,252	100%
groovy	306,020,029	100%
activcat	66,263,720	100%
anon.news	12,946,186	0%
lurker1	-223,650,254	-100%